Rare Disease Facts

1 in 10 

People are Affected by 

Rare Disease 


1 in 2

Rare Diseases Don't 

Have a Foundation or

Research Support


​​​1 of 2

Patients Diagnosed with

a Rare Disease is a Child

​​​3 of 10

Children with a Rare

Disease Won't Live to

See Their 5th Birthday


Million People Suffer

From a Rare Disease

Globally  (greater than

the population of the



8 in 10

Rare Diseases are

Caused by a Faulty


​​​8 Years

The Average Time it

Takes for Rare Patients

to Receive an Accurate




of Rare Diseases Lack

an FDA Approved



Diseases Impact More

People Than Cancer and

AIDS Combined


Types of Rare Disease

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